Alisha McGuire, MSW, LCSW, APHSW-C

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Depending upon location, pediatric patients and their families electing to have their child’s end of life at home may not have access to pediatric-trained teams and/or staff. This impacts psychosocial support to families as they navigate anticipatory grief and bereavement. A small pilot program from an Indiana-based Pediatric Palliative Care Team looked to address this gap through the implementation of legacy interventions for families to do at home called a “Memory-Making Kit.” These kits, aimed to independently facilitate legacy activities at home, allowed for the creation of tangible keepsakes while also creating intangible meaning-making in the process. In sharing this pilot program, the hope is to inspire other programs (both pediatric and adult-based) to address similar gaps that may exist within their area.

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